LAL Solace Patient Community - LAL Deficiency (Lysosomal Acid Lipase Disease) & Wolman Disease patient support - LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.

  • http://www.lalsolace.org/profiles/members/ Members - LAL Solace Patient Community - All Members | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.
  • http://www.lalsolace.org/page/lal-info LAL D Info - LAL Solace Patient Community - Lysosomal Acid Lipase Deficiency (LAL D):LAL D is an inherited (genetic) disorder which means that it is passed down within a family. It is autosomal recessiv…
  • http://www.lalsolace.org/page/getting-tested-for-lal-deficiency Selected LAL Deficiency Treatment Centers * - LAL Solace Patient Community -  USA California Lucile Packard Children's Hospital at StanfordDr. Greg EnnsPediatric Genetics730 Welch Rd 2APalo Alto, CA9…
  • http://www.lalsolace.org/page/6373865:Page:1110 LYSOSOMAL ACID LIPASE DEFICIENCY (LAL D) - LAL Solace Patient Community - Lysosomal Acid Lipase Deficiency (LAL D):LAL D is an inherited (genetic) disorder which means that it is passed down within a family.  It is autosoma…
  • http://www.lalsolace.org/page/regulatory-process Regulatory Process - LAL Solace Patient Community - RegulatoryProcess for the Approval of DrugsBefore any drug can beprescribed Regulatory agencies such as the US Food and DrugAdministration (FDA) and Europe…
  • http://www.lalsolace.org/page/getting-tested-1 Getting Tested - LAL Solace Patient Community - Getting TestedLAL D can be diagnosed using a simple blood test that measures the amount of the Lysosomal Acid Lipase (LAL) enzyme.  People that have…
  • http://www.lalsolace.org/page/clinical-trials Clinical Trials - LAL Solace Patient Community - Clinical TrialsSynageva BioPharma Corporation was bought by Alexion Pharmaceuticals, which continues to study sebelipase alfa under the commercial name Kanuma…
  • http://www.lalsolace.org/page/resources-1 Resources - LAL Solace Patient Community - NORD - http://www.rarediseases.orgThe National Organization for Rare Disorders (NORD), is a unique federation of voluntary health organizations dedicated to h…
  • http://www.lalsolace.org/forum Discussion Forum - LAL Solace Patient Community - Latest Activity - Forum Discussions | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Dis…
  • http://www.lalsolace.org/events Events - LAL Solace Patient Community - Upcoming Events | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.
  • http://www.lalsolace.org/page/about-us About Us - LAL Solace Patient Community - The SOLACE organization (Support Organization for LAL Deficiency - Advocacy, Care and Expertise) was created to bring LAL Deficiency patients and families toge…
  • http://www.lalsolace.org/page/contact-1 Contact - LAL Solace Patient Community - To contact LAL Solace, email us at: [email protected] check this email every day so I can get back with you quickly. Also, you can send me (Mary Pruitt) a…
  • http://www.lalsolace.org/video Videos - LAL Solace Patient Community - All Videos | LAL Solace is an online support group to help patients with LAL Deficiency (Lysosomal Acid Lipase Disease) and Wolman Disease.
  • http://www.lalsolace.org/forum/topics/how-long-are-your-infusions#comments How long are your infusions? - LAL Solace Patient Community - My daughter will be starting her Kanuma infusions soon, and I was just wondering how long the infusions are that you or your children receive, and if you've ev…
  • http://www.lalsolace.org/profiles/blogs/rare-disease-day-getting-the-word-out Rare Disease Day...Getting the Word Out! - LAL Solace Patient Community - Next week, on February 29 it will be Rare Disease Day! A day to recognize those of us who have been touched by a rare disease. And with LAL Deficiency, we cert…
  • http://www.lalsolace.org/profiles/blogs/world-symposium-2012 WORLD Symposium 2012 - LAL Solace Patient Community - Two weeks ago, Stephanie Dykes, Dakota's mom and our Board's secretary, and I travelled to San Diego for the WORLD Symposium. This was a conference dedicated t…
  • http://www.lalsolace.org/profiles/blogs/new-to-lal-solace New to LAL Solace - LAL Solace Patient Community - All,We are the parents of a CESD patient. Our oldest daughter, Maureen, was diagnosed with CESD when she was 5 years old. She is now 14 and we are glad to hea…

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  • Amazon Customer - Useless after only 3 months.

    Used almost daily for only 3 months, liked it, took care of it and it suddenly stopped taking a charge and now no longer works. Can't be returned so it's trash. Definitely NOT worth paying for a measly 3 months of use. '

  • MPatrie - Adventure Mystery Gender Division and Romance

    Amazing adventure of deceit, mystery, gender division and sparks of romance. Bella Forrest has outdone herself in this amazing novel full of twists and turns, lies and surprising loyalties. This is her first "non shade" novel I've read. As a loyal ShadeAddict (if you haven't read the Shade series... What are you waiting for? Start them right after reading this book) I feel almost guilty for saying Gender Games far surpasses anything I've read from Bella Forrest to date. I've already preordered The Gender Secret (the second book in this series) and can't wait for it's release in November to find out what happened to Violet's brother, cross my fingers for another steamy reunion with Viggo, and perhaps find out how Ms Dale knew exactly what to train Violet for....

  • David Owen - I appreciated the thorough explanations of how the digestive (gastrointestinal) ...

    I appreciated the thorough explanations of how the digestive (gastrointestinal) system works and the role of different parts of it. He also covers the ins and outs of natural supplementation to correct many digestive issues. Overall a very worthwhile read. An occasional reviewer criticizes that lack of more specific recommendations, but there are sufficient general recommendations for treatment. More specific would require individualized consultation, which a book cannot offer. I appreciated his specific information on how to find appropriate medical practitioners.

  • DAVS - Excelnte coche

    El cohe es super funcional, liviano y como para cualquier viaje. Buen material y facil de armar. el espacio que ocupa es poco, sin embargo la altura puede limitar el transporte, especialmente en los vehiculos pequeños.

  • Dave - Fantastic for caffeinating ANYTHING!

    Can you honestly think of anything that wouldn't benefit from being caffeinated or more caffeinated? ME EITHER! I'm horribly addicted to energy drinks, and one of these will take your soda from "wired" to "bouncing off the walls" in a quick peel and stir! Other things I've tried this with: Orange Juice, Watermelon Juice, Grape Juice, Iced Tea, Wine, and *ugh* plain water... but it definitely added some zing to all of them! The sticks are very convenient to use, and all that you have to do is peel and stir - just like using a sugar packet. It's also great if you have someone in the office (I'm looking at you... You know who you are...) that insists on brewing decaf (a.k.a. the Devil's Brew) - you can still get your morning pick me up with these handy little guys in your briefcase. I'm very happy with these, and I feel very secure with the packaging - there's not going to be any accidental spills with these, it's all very well put together. I received this item at a discount in exchange for an honest review.

  • Night Reader - Totally useles format!

    I use a Kindle 8.9 HDX. The recipes are unreadable! No solution, can't print them out nor can you share to another site like ChefTap. Won't even allow cut and paste. What's with the paranoia? I purchased a subscription, I should be able to save or print the recipes as I please.